5 Positive things.

This is difficult today…

1. I love how my dog looks at me. He has the softest loving eyes. He makes me feel safe.

2. Woodsie our not pure bred Sylky chicken laid an egg 2 days in a row. Yesterday we heard the 4 chickens making a terrible noise. Everyone stormed out, thinking th neighbours dog is playing peeping Tom again. Nope they all stood in a circle being happy about the egg that Woodsie laid in the middle of the chicken coop.

I found another one when I went to feed them just now. It is quite a picture to see how they all looked at the egg… It was still warm. It is one cock named Becky (he has a deformed beak and is a beautiful buff Orpington) then he has 3 wifes. Kleintjie and Daisy, black Pekins and then the famous Woodsie.

I wonder if they want some offspring, since Becky is regularly doing his duty. That in itself is something to behold. The hens disappear under him, when he is doing his thing and after a big noise you just see this tiny black hen running away from underneath him. Okay, I think I just did the unmentionable and discussed our chickens sex life online… Really?

3. I love my eldest daughter’s gold coloured hair. It is so beautiful and she herself is so beautiful inside and out.

4. We got awesome gifts from one of our aftercare kid’s mothers.

5. God is good, all the time. I love my friend Asanda Kwenena, she is saying this everytime I see her and she gives me hugs and tells me she loves me. Her beautiful kids Vuvu and Olo is also in my aftercare.

Okay, see it wasn’t that difficult. Sometimes we just need to take our hand off of our face, so that we don’t just see the missery in life.

But anyway, much love and kindness.

Saro (Elmarie)

Advertisement

Five things to be grateful for 1.

I woke up today.

Stroked a bunny after feeding him.

My youngest is coming home.

Holiday is starting today.

I had such fun with my Dementia Mentors friends last night.

Ok, I am going to try and do this every day. Counting my blessings. I challenge you to do the same. If you decide to do the same, post a link back to this post and use the red rose, thank you.

Much love and kindness.

Saro (Elmarie)

I don’t want it!

I don’t want the strokes… I don’t want the dementia!!!!! It makes me miserable. Some days I feel courageous and other days I feel like this. I feel stupid, incompetent and useless. If my family reads or hears this, they will assure me that it is not the case, but it is how I feel.

The Bipolar does not help either. It is something that has been haunting me for practically all my life. Suicide attempts, horrible highs and then the terrible downs, where all is black with no hope. There is also the aggression. That is the worst of all. It makes me a monster. It harms me and my family equally and sometimes I think it harms me most because of the guild and sorrow.

I am on so much medication that if I take any more, I will be a slobbering fool. The medication is a mood stabilizer and the Dopaquel takes care of the aggression and insomnia. Obviously there is nothing to be done on the dementia medication wise. They gave me Memantine for 6 months, to see if it keeps the decline less, but I don’t see any and have stopped taking it. The other medication I take because it keeps me alive.

Then there is the anxiety and epilepsy…. I think I cover almost all the bases on what can go wrong in the head. Thank God I am mentally and behaviorally stable and don’t have personality or something like that problems.

I just can’t stop crying today. My husband is in a sh@t mood as well and that’s not helping. I cannot handle conflict. That simply is too much for me. I feel as if I cannot do anything anymore, which is not really true, I can still wipe my own butt so to speak. I keep on putting things away and when I or everyone else starts looking for something such a huge cloud of anxiety comes over me.

I cannot say something about my husband here, because it will not be right, I do love him though, but I think he needs help as well mentally. How to address that is beyond me. My kids are a tremendous help and comfort.

All these things is not written on my face, or scars or something. It is in my fricken head. As long as I keep my mouth shut nobody will be any the wiser. I do have a speech impairment because of the strokes and the cognitive impairment is …. as I said as long as I keep my mouth shut.

But how can I shut my mouth and not talk, because with the dementia in the later stages my speech will disappear all together.

Many people think that having dementia of whatever kind you are immediately unable to walk talk or function. It is not true. You can still have a meaningful life for many years until THAT DAY comes. Yes we need assistance and the assistance will be increasingly needed. But people are not all of a sudden this monsters that does not want to shower or whatever. Yes I feel sorry for the caregivers and I am very very grateful for what they do. They dedicate their lives to take care of their loved ones. Thing is the ME does not go away. I will always be there, even if it looks like I’m just a shell. Nobody can suddenly go from somebody to a nobody. Until the day you die, you will be a somebody with a name. I am Saro or Elmarie.

All this is breaking my heart for myself, my family and everyone that have the same conditions. But life is not fair. Nowhere is there any guarantee that life will or is moonshine and roses. If someone have cancer or some other disease everyone go and visit etc. Most of the people that I speak to that have dementia said that they have lost friends and even family. So many are lonely. I am so grateful for Dementia Mentors that introduced me to friends that are the same as me. Days like this I just want to curl up and die or something like that and no dear daughters of mine that reads my blogs you don’t have to put me on suicide watch. I will most probably recover and be on my merry way again. I am not going to re read this post so please put up with the mistakes and thank you for reading/listening, it is appreciated.

Saro