Tag: dementia coping skills

Day 5 of lock down

I wonder how you get the picture to the side, or maybe it should be in the middle… anyways, here I start my blog with one of my random thoughts. Oh well, that’s okay too. I don’t know if I said it somewhere, but I decided that in this time I will blog again, play Dawn of Titans and do my jewelry. Well, I’m successful thus far.

Sad thing just happened. I’m looking after baby chicks that is been hatched in an incubator. One little Orpington just died. He had lovely white lines around his eyes. His dad… a formidable huge Orpington with a real bad temper died a month or so ago. I’m so not taking this very well. A wonderful thing about this chicken thing is that a few times I had the little chicken born right in my hand. That is an awesome experience.

I enjoyed my first game on Dawn of Titans. There are a lot of new players I don’t know and way to little players. Wonder where my kids went off wondering…. (mind you grown-ups between 30 and 50 years old)

My jewelry education on Youtube is quite extensive. There is this woman Darlene, I just adore her and she is so practical and awesome creative and good ideas…. and so I can go on.

Had a very nice Zoom Dementia Mentors Zoom meeting today. We had such a laugh, Peter had to chase a bumblebee out of his glasshouse where he was chatting from. Everyone is learning or doing zoom and whatever meetings now, while we have been doing it for like ever… Our Virtual Cafe’s is awesome. We are family, friends and meet everyday. So awesome. I just love the lot of them. Everyone has some form of dementia in different stages, although most of us are early onset. Some days we all have on hats, or tie dye shirts (don’t know how to spell that, not that it matter anymore for me, as long as I can communicate.

My husband is driving me around the bend. He is comfort eating and smoking his pipe, but I put my mask on when he smokes. I will most probably not go out anyway.

Have to go. Toodles

Saro (Elmarie)

I’m back blogging.

Ok, I’m just going to type as it comes up. I have not been blogging all this time, because I was afraid that I cannot do it anymore. It was shaky according to my standards already, but let me not be harsh on myself… I do have early onset vascular dementia after all.

I started out getting an image, which I don’t like anymore, but decided to keep it anyway. I woke up one morning somewhere end last year and my speech was almost gone and what was left, was incomprehensible. It was dreadful. I already had aphasia after the first stroke, but not that bad.

Well I started making paper beads and then jewelry. Something I just could not believe, because I have severe hand tremors. At one stage I could not write, had to be fed etc. I so felt pathetic, which of cause is stupid. How can a person feel pathetic about something you can’t help. I just tried to email from my phone some of the photos of my jewelry to my laptop, but the fricken thing updated again and of cause I will have to figure it out again from scratch. Well to make this shorter, my hand tremors improved and my speech. How that works, is beyond me, although I read on google that they use art therapy for speech problems. And of cause, God is awesome and deserve all the credit, because He is the one putting this paper bead, jewelry making thing in me. I don’t care what doctors say, that’s what happened to me. I do not take new medication, in fact the medication I’ve been taking for my hand tremors, my pharmacist is unable to get hold of.

In the meantime, I noticed that my memory is going downhill. I always was still aware of what went wrong, now most of the time I just don’t know, which in a way is bliss. Not beating myself up that much.

My family also is making progress. There is no more…. don’t worry mommy I also forget with a whole story about the forgetting. What most people don’t realize is that normal forget is something you can be reminded and you remember again or going back in your tracks or whatever trick you do to remember something…. with us there is just a black hole… nothingness. Whatever we forgot just never existed where it concerns us Us, being people that falls under the dementia umbrella. I have a note for the 30th of March in my diary to contribute for tommy otter. Who and what the hell that is, is beyond me. It is written with my pink pen in my best handwriting. Oh well, one of those things. It kind of suck to put something in your diary to remember and when you get to it, have absolutely no idea what it is.

I can’t remember what I really wanted to say, except that I wanted to see if I can still write. Well I hope it is not to shabby. My reading is starting to suck…. long things only get read about a quarter in, then the not remember kicks in.

Now since I don’t like too long stuff let me say bye. This was day 2 of total lockdown for South Africa. Hope I will be able to organize a schedule. Jewelry, blogging, online game and ofc the chickens.

Toodles

Saro (Elmarie)